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Next time any of us feel like moaning about our lot in life, or moaning about someone in chat typing nasty words on a screen at us, or just moaning in general, read this story. It kind of puts life in perspective really doesn,t it?
linkI admire famlies with disabled people of all ages, what they must endure, my knee seems fable to add, but we have cared for ‘ Frosty Breaches ‘ whom was mainly able bodied for the last 15 yrs, but demanding like another child, ontop of that i was bed riden so my mam of 60 had us all, my 2 kids of 9 n 2 and a wee wild one at that he is..!! plus running after us all, school runs, dinners, changin beds as ‘ Frosty ‘ at one point wouldnt get out of bed..!! the 3mths we went away in Australia, and I didnt see my mam much in, she changed dramtically, fresh face, less tired, less stressed, relaxed n chilled,…
but people with sereve disabled people whom need 24/7 care, I know for one I wouldnt cope, Im bless with 2 perfect children and thx my lucky stars they are both healthy…
Lets hope this raises more awareness for the need for restbite care for the careers of such families… as believe me its needed….
my nephew has angelmans disorder. so called cos the kids who suffer all have white blonde hair and bright blue eyes. its a rare genetic disorder. hes 8 now….has never spoken and only learned to walk at age 5. he alternates betwwen bouts of screaming and hysterical laughter. and many times when hes been to visit i have thought my god how can they cope 24/7. he will never be able to lead a normal life but goes to a fantastic special school. they also have 2 younger kids a girl 4 and little boy 18mnths…hes also epiletic and can suffer 10 seizures a day. i applaud anyone who lives day in day out with a disabled child. and cannot condemn or even comprehend what the mothers of these children go through.
@pats wrote:
my nephew has angelmans disorder. so called cos the kids who suffer all have white blonde hair and bright blue eyes. its a rare genetic disorder. hes 8 now….has never spoken and only learned to walk at age 5. he alternates betwwen bouts of screaming and hysterical laughter. and many times when hes been to visit i have thought my god how can they cope 24/7. he will never be able to lead a normal life but goes to a fantastic special school. they also have 2 younger kids a girl 4 and little boy 18mnths…hes also epiletic and can suffer 10 seizures a day. i applaud anyone who lives day in day out with a disabled child. and cannot condemn or even comprehend what the mothers of these children go through.
takes a very speical mother indeed PATS..
im fortunate as my son is only deaf non speaking and autistic and so is able bodied and able to toilet /clean and has all his motor abilities, but i have still felt a small amount of the depair when he was younger especially, the frustration tantrums, violence,unable to cope with different things horrible noises, the lack of communication or connection and so on but it is nothing in comparison to people that have children with such a severe disability and i can truly see why they sometimes feel that way, during low moments you just question what their lifes going to be like and is it worth it for them more than yourself, but like the writer of the piece said you couldnt bear not to have them around to be able to love them, to hold those precious moments when things are as ok as they can be,though i havent a clue how desperate they must be sometimes i can see where they are coming from,
which tbh bat is one reason the keyboard gansters do wind me up sometimes with their threats and pure evil vindictiveness they dont realise how precious life, and the people around them are.Bat wrote:Next time any of us feel like moaning about our lot in life, or moaning about someone in chat typing nasty words on a screen at us, or just moaning in general, read this story. It kind of puts life in perspective really doesn,t it?
link[/quotea brutal but literal way to describe the utter feeling of helplessness of a parent or carer in labours, wonderful national health service, a service that has seen a 40per cent rise in management positions in the last 7 years. and a rise of 60per cent in foreign labour. mabey they do care, but they havent got a clue what aunt ethel is actually saying to them.
Thank you for posting that Bat. What a heart rending account from a very brave woman.
what is the point of noahs existence
its clearly to late to do anything now
would it be infanticide to end this virtual non existence
or just the right thing to doI know I couldn’t make a decision like that. To end a child’s life.
I assume they are giving him drugs to try and control some of his symptoms, but they must be walking a tightrope as he must need large doses and he is so tiny. It is just so very sad.
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